Our favorite housemate is definitely Trin. Trin is an 8-year old with Angelman's Syndrome, who is (almost) always happy and full of energy. Trin is nonverbal, so she is unable to tell her teachers and significant others in her life (like Alex and I) how her night was, what she's looking forward to, why she's in such high spirits, why she may seem more lethargic today and such things. To address this her mother, Janice, will often write emails about Trin's life to keep everyone up-to-date on what's going on in Trin's world. Janice calls these regular emails "Trin's Words" (which I think is really sweet).
Because we live with and are such good friends with Trin, Alex and I often make it into 'Trin's Words'. Here's a short excerpt from the most recent 'Trin's Words' that paints a bit of a picture of what it's like to live in Alex and I's world. (At times Trin will have lots seizures for a week or more. These are tough times for Trin, and she's usually not in good spirits during those times. She is ending a rough couple of weeks right now.)
"During the last week or so, especially after her run in with too many clonidine, she wouldn't even give Lucas the time of day, and she LOVES Lucas! Yesterday, when she came in from school, Alex and Lucas were downstairs with me. She JUMPED into Lucas's lap and hugged him like she hadn't seen him in a very long time. It was very sweet. Unfortunately, I didn't have a camera nearby, and I missed some GREAT photo opportunities.
Alex and Lucas are getting closer and closer to baby time, and we've been processing what life will be like with a baby in the house and about how to keep everyone comfortable and safe. They haven't found their perfect place to buy or move to yet, and we've all about decided that the best thing will be for them to stay here while they're getting to know their new baby and getting used to being parents... so it seems that they and the baby will be here at least for the next few months (and longer if it all works out). :) They borrowed one of Trin's babies yesterday afternoon to practice diapering... and we practiced with Trin being gentle with the baby. It's going to be exciting, having a baby around! :) Trin will be like a big sister or big cousin soon! Cool!!! I've always wanted her to have sibs, but just not in the cards for me at this point in life. :)"
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